Department Blog

Scholarly Communication

NIH issues finalized policy on genomic data sharing

September 7th, 2014 by Amy Studer

Image of Genomic Data Sharing Policy logo

On August 26, 2014, the National Institutes of Health has issued a final NIH Genomic Data Sharing (GDS) policy “to promote data sharing as a way to speed the translation of data into knowledge, products and procedures that improve health while protecting the privacy of research participants.”(NIH, August 27, 2014)

According to a post in The Chronicle of Higher Education, “The data-sharing policy, which will take effect with grants awarded in January, will give agency-financed researchers six months to load any genomic data they collect—from human or nonhuman subjects—into a government-established database or a recognized alternative.” (Basken, August 28, 2014)

References and Additional Information:

Basken, P. (August 28, 2014). NIH Tells Genomic Researchers: ‘You Must Share Data.’ The Chronicle of Higher Education. Accessed September 7, 2014, from http://chronicle.com/article/NIH-Tells-Genomic-Researchers-/148509/

National Institutes of Health Genomic Data Sharing Governance Committee. (2014). Data use under the NIH GWAS Data Sharing Policy and future directions. Nature Genetics, 46(9), 934-938. doi: 10.1038/ng.3062. Retrieved September 7, 2014, from http://www.nature.com/ng/journal/v46/n9/full/ng.3062.html

U.S. National Institutes of Health. (2014). Genomic data sharing. Accessed September 7, 2014, from http://gds.nih.gov/index.html

U.S. National Institutes of Health. (August 27, 2014). NIH Genomic Data Sharing Policy (NOT-OD-14-124). Accessed September 7, 2014, from http://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-124.html

U.S. National Institutes of Health. (August 27, 2014). NIH issues finalized policy on genomic data sharing. NIH News & Events Blog. Accessed September 7, 2014, from http://www.nih.gov/news/health/aug2014/od-27.htm